Wednesday, July 10, 2013

Trust and Psoriasis



TRUST

No, I don't have Psoriasis, but my baby does. My precious Grace Lihua, who already has hand and foot deformities as result of amniotic banding syndrome, starting exhibiting psoriasis spots about a year ago, and it has progressively gotten worse.

My sweet silly girl
TRUST

We went to a dermatologist, who aside from diagnosing it and treating it with steroid cream, didn't have much else to offer.

TRUST

What to do, Lord? My sweet baby is experiencing discomfort, and we can't keep her on the steroid cream for more than week at a time, plus, it only works for that week then it gets bad again. How do we manage it?!

My poor baby's arm and finger.
TRUST ME, Suzanne.

Ok, so first order of business, learn all I can about this disease. Psoriasis is a skin disorder where the skin cell grow too quickly in places resulting in red patches. They also like to grow in places where there has been an injury. For instance, on Grace, it has attacked the pinky finger on which she had surgery and it has attacked a few places where she had a bug bite. It is also on both her elbows and behind her knees, and I am just now starting to see to it form on her knee caps. Additionally, it is an autoimmune response in the body, so many people believe that dermatologists are not the ones to see about this disorder because they are not looking to treat it as such. There is no cure. 

TRUST

As I read page after page of testimonies, trials, disappointments and pain, I discovered that everyone has a unique way in which they manage their psoriasis. While it isn't the same for everyone, there are definitely some overarching methods that seem to work for a majority of people. Reading all this can be overwhelming and disheartening, but it has become very clear to me through this, that there is one thing God wants me to do. 

TRUST HIM

OK Lord, I am just going to pick some things that seem to have worked for a group of people, and we will see how Grace does. First, we have taken Grace off dairy and gluten free. Since, this is also my life, this is not a difficult concept for me, but for my baby girl, well, not so easy. Imagine for a moment taking away your child's favorite treat. For Grace, that is cheese and milk. 

TRUST ME, Suzanne.

I have been using coconut oil for while on all her spots two or three times a day. It hasn't really made much difference, so I am working now on mixing some other oils. I would prefer to use all natural remedies on her skin, finding a way to manage it as naturally as possible. 

I am TRUSTING YOU, my Lord.

"The Lord is my rock, my fortress and my deliverer;
my God is my rock, in whom I take refuge,

my shield and the horn of my salvation, my stronghold." 
(Psalm 18:2)

Please share your Psoriasis stories with us. I will continue to share about our trials and errors and successes as we walk this path. We still have much to learn about it and would love to gain knowledge and insight from those who have walked this path before us and continue to walk it daily with us. 

Blessings to you all,


4 comments:

  1. We have found psoriasis to be a hereditary disease in our family. My grandmother, father & 2 of my siblings have dealt with psoriasis. :( For my grandmother they used a light therapy once a week I believe for a while. So, that might be something you consider. My sister has large patches on her elbows/back of her arms and of course in the heat it aggravates it and it becomes very red. She is about to go to the doctor again because the creams they prescribed have not worked. I will let you know what we hear and until then, I will pray for your daughter...our adopted babies have been through so much already that I know its hard to see her deal with this too. Hang in there mama!

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    1. Thanks for your prayers, insight and encouragement! We appreciate it!!

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